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Acetylcysteine and Pulmonary Fibrosis

8 messages in topic  
1 brenda.farmer3   2004-06-09 21:08

Anything new out there with NAC being used for Pulmonary Fibrosis or any scaring in the lungs?

2 khairoonally   2006-03-27 02:56

Would like to hear about experience of members using Acetylcysteine in Diffuse Pulmonary Fibrosis or Interstitial Lung Disease. Along with Steroids and or other meds.

3 highfillcpa   2006-03-28 15:55

Started using NAC three months ago, 3 ml three times a day (20% solution) for IPF. Breathing test baseline December 12, 2005. Followup breathing test March 12 showed 13 percent increase in diffusion rate, from 25 percent to 38 percent, and a doubling of vital capacity. Sorry, the doctor spoke in terms of how many ccs in December compared to March 12 and I Don't remember the numbers. Significant difference in how I look, and feel. Scheduled to take another test June 26; will stay on NAC until then at same dosage. I believe this is significant.

4 ei9hk05   2006-07-11 10:28

Anyone using NAC for idiopathic pulmonary fibrosis?
Thanks,
Toni

5 mariannebon   2008-06-23 12:34

These are old posts but I'll add that yes - I use this in my nebulizer 3 times a day. I've done this since Dec of 2005. Five years ago they told me I probably wouldn't live for 5 years but here I am and my fibrosis has been almost stable.

6 jtoloughlin   2009-11-18 23:42

I started taking acetylcysteine for idiopathic pulmonary fibrosis, orally on Oct. 23, 2009. In about one month time it is too early to tell if I have had any improvement in breathing, but I plan to continue taking it. If anyone out there has any pro/con stories about taking this medication I would be interested in your comments. Thanks, Terry

7 kanthesh.iyer   Edited 2009-12-14 07:45 2009-12-14 07:43

I have been diagnosed with dyspnea and Idiopathic pulmonary fibrosis and am on supplementary O2. I also have RA. PREDNISONE along with NAC was prescribed. The very first dose of 20mg pred and 600mg nac made a new man out of me. I have no joint pains, no inflammation. I have become energetic and am in a positive frame of mind. My breathing seems to have improved. I exercise 90 mins a day. I am 72 but feel a lot younger. It has been two months now and my condition is stable.

My blood sats have improved even after exertion, and become normal within a minute.

8 patriciapickering   2012-09-08 18:05

Hi! anybody?
I have just found out i have this disease started on three tablets a day but have been couging even more since being on them chest and throat hurt
please anyone had similar problem?
many thanks
Pat


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